Resources

National Down Syndrome Organizations

National Down Syndrome Society “the leading human rights organization for all individuals with Down syndrome.”

http://www.ndss.org


National Down Syndrome Congress   “dedicated to an improved world for individuals with Down syndrome. We are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome.”
Educate.Advocate.Empower.Inspire.

http://www.ndsccenter.org


Global Down Syndrome Foundation “Dedicated to significantly improving the lives of people with Down syndrome through RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY.”

http://www.globaldownsyndrome.org


National Association for Down Syndrome supporting all persons with Down syndrome in achieving their full potential.”

https://www.nads.org/


Down Syndrome Affiliates in Action“envisions a future in which persons with Down syndrome have access to the resources they need to meet their potential.”

http://www.dsaia.org

Louisiana Down Syndrome Organizations

Down Syndrome Association of Greater New Orleans (DSAGNO) “working with community leaders and government agencies to educate the community toward a greater understanding of the issues facing individuals with Down syndrome.”

https://dsagno.org/

Upside Downs   “Anything is Possible with Down Syndrome!”

http://upside-downs.org/

Down Syndrome Diagnosis & Pregnancy

National Down Syndrome Society “the leading human rights organization for all individuals with Down syndrome.”

https://www.ndss.org/about-down-syndrome/down-syndrome/

National Down Syndrome Congress “dedicated to an improved world for individuals with Down syndrome. We are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome.”
Educate.Advocate.Empower.Inspire.

https://www.ndsccenter.org/programs-resources/new-and-expectant-parents/

KidsHealth “giving families the tools and confidence to make the best health choices.”

https://kidshealth.org/en/parents/down-syndrome.html?WT.ac=ctg#catgenetic

National Institute of Health “Turning discovery into health”

https://www.nih.gov/

PubMed – U.S. Library of Medicine “PubMed comprises more than 29 million citations for biomedical literature from MEDLINE, life science journals, and online books.”

https://www.ncbi.nlm.nih.gov/pubmed/

HealthyChildren.org “Powered by Pediatricians. Trusted by Parents” from the American Academy of Pediatrics.”

https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Pages/Children-with-Down-Syndrome-Health-Care-Information-for-Families.aspx

Center for Parent Information and Resources “Supporting the Parent Centers Who Serve Families of Children with Disabilities”

https://www.parentcenterhub.org/

Down Syndrome Pregnancy “providing honest, compassionate, medically-reviewed, and informative support for those preparing for the birth of a baby with Down syndrome.”

http://downsyndromepregnancy.org

Brighter Tomorrows “Providing families with accurate information about Down syndrome.”

http://www.brightertomorrows.org/

National Advocacy Organizations

National Down Syndrome Society“the leading human rights organization for all individuals with Down syndrome.”

https://www.ndss.org/advocate/national-advocacy-public-policy/

“dedicated to an improved world for individuals with Down syndrome. We are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome.”
Educate.Advocate.Empower.Inspire.“

https://www.ndsccenter.org/political-advocacy/

The Arc of the United States “The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.”

https://www.ndsccenter.org/political-advocacy/national-down-syndrome-advocacy-coalition

National Down Syndrome Advocacy Coalition   “designed to educate individuals with Down Syndrome, their family members and other allies about policy issues and give them the advocacy tools and techniques they need to effectively engage with their legislators to advocate for change.”

https://www.thearc.org/

Louisiana Advocacy Organizations

The Arc of Louisiana “advocates with and for all people with intellectual and related developmental disabilities and their families so that they shall live to their fullest potential.”

http://www.thearcla.org/

Advocacy Center of Louisiana “serving people with disabilities and senior citizens.”

http://www.advocacyla.org/

Northshore Families Helping Families “provides individuals with disabilities the services, information, resources and support needed to enhance their independence, productivity and inclusion within our community.”

https://fhfnorthshore.org/