October 3 – Three Types of Down Syndrome!

When I say Coldon has Down syndrome, did you wonder what type of Down syndrome he has? Wait… there’s more than one?  Actually yes, there are three; nondisjunction, translocation and mosacism. Coldon was diagnosed with non-disjunction Trisomy 21. (there are several different “nicknames” out there. Our genetics counselor called it “Free Trisomy 21.”) I know […]

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October 1 – It’s Down Syndrome Awareness Month!

October 1st begins Down syndrome awareness month; my favorite part of Down syndrome, aside from Coldon! 💙💛💙 Since learning of Coldon’s diagnosis, God has placed on my heart a need to support other DS families and to inform and educate society about the Down syndrome you don’t see in fact sheets and antiquated text books— the […]

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October 2 – What is Down Syndrome?

What is Down syndrome? The medical term is Trisomy 21; a genetic condition where an individual has a third copy of their 21st Chromosome. They literally have “a little something extra!”  Fun fact about Down syndrome: there are three different types of Don syndrome; no -disjunction (most common type), translocation (only type that’s inherited) and […]

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How Anxiety has controlled my happiness.

I’ve recently noticed a lot of posts concerning depression and anxiety from fellow moms and organizations. This isn’t coincidental , it’s God telling me it’s time to open up and share more of my story. “Caregiver burnout,” “do you fear something will happen to your child;” “do you feel like you’re a bad mom?” I’ve […]

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A Mother Finding Her Purpose!

“Trust in the Lord with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your path straight.” Proverbs 3 5-6 I’m always amazed how the book of Proverbs speaks to me; at the same time, I’m not surprised. The Bible is God’s word […]

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Triplets are ending Lawsyndrome!

Yesterday, 4/15, Coldon’s Krewe had the pleasure of meeting with Congressman Steve Scalise in Metairie, LA. I’m not sure if Congressman Scalise has ever had triplets in his office, but this was an amazing opportunity to show him that Coldon isn’t any different than Ella and Greyson! Coldon was babbling, squirming and wanted to inspect the […]

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The only way to make CHANGE is to create AWARENESS!

“It’s not Down syndrome holding us back, it’s Lawsyndrome.” This phrase from former President and CEO of the National Down Syndrome Society (NDSS), Sarah Heart Weir, has become the reason I fight for Coldon and all individuals with disabilities. Once society becomes aware of the reality these laws force, fully capable individuals into, CHANGE will […]

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